My name is Jim Burnett and like you, I have epilepsy. I have had it for 60 years now and have been employed in different places and married for over 30 years. This doesn’t mean a great deal to you expect to tell you that because you have epilepsy doesn’t mean that you can’t live your life to the fullest that you can.
You have lots of people helping you do this; doctors; nurses; pharmacists; specialist; parents; and others like the people here who want to help you through this. But as necessary as these people are for you, there is one person who can make their efforts work faster and more effectively. That person is in this room, right now. It’s You!
“What do you mean me? What can I do?”
When I was 16 I started having auras. They examined me in a hospital and told me I have epilepsy. I thought about it and then told myself that I wasn’t going to be afraid of it. Fear is the giving-in to a bad situation which allows it to get worse.
When I had auras I would just say to myself: “Oh, you again. Well get lost. I’m busy right now.” Then I would get busy doing something as I found that the more my mind was thinking about something else, the less likelihood that the aura would continue. The next time I thought of it, it was gone without me realizing it.
I like singing so sometimes I would just sing one or two of my favourite songs to myself if I felt an aura coming on: “Keep Right On To The End Of The Road” or “When You Walk Through A Storm.”
The words are very meaningful to me and the music accentuates them so that I hear them deep within me.
The first song is: “Keep Right On To The End Of The Road”. It was sung by Sir Harry Lauder who was one of the first entertainers who sang to the soldiers on the battlefields during the second world war. He always finished his program with this song to encourage the soldiers to keep on going.
“Keep right on to the end of the road, keep right, onto, the end;
Though the way be long let your heart beat strong; Keep right, on round, the bend; Though you’re tired and weary, still journey on, till you come to your happy abode; Where all old friends will meet again; we’ll be there, at the end, of the road.”
The other song I mentioned was: “When You Walk Through A Storm”, and we all do at time.
“When you walk through a storm, hold your head up high and don’t be afraid of the dark; At the end of the storm there’s a golden sky and the sweet silver of a lark;
Walk on through the wind, walk on through the rain, though your dreams be tossed and blown;
Walk on, walk on, with hope in your heart and you’ll never walk alone; you’ll never walk alone.”
None of these examples or ideas that I have suggested are guaranteed to be effective every time. But they won’t work at all if you don’t start out the with determination that you are going to live your own life the best you can.
What songs do you sing or listen to so as to keep your mind off unpleasant times? You might think them silly but there could be people waiting to hear about them as they help them to keep their minds off of unpleasant thoughts or feelings. Send us an article telling us what helps you and we might get a response saying how pleased they were to hear about it.
© Epilepsy Stories 2015